Are you enjoying the coronavirus lockdown? Surprisingly, I know quite a few people who are. For some it’s given them unexpected time off work, time with their family, and they’ve been doing activities they haven’t had time for for years. But for others it’s been a truly awful period. Many people are miserable and scared, […]
Postural Orthostatic Tachycardia Syndrome
In 2015 I was diagnosed with osteoporosis, which is a common side effect of living with Ehlers-Danlos Syndrome. EDS causes joint pain, which makes it difficult to exercise, and inactivity over many years can lead to weak bones. I was diagnosed after a bone scan, which is a brief non-invasive process that measures a person’s […]
This article is the 33rd I’ve posted on my site, but the first for nine months. I wrote sixteen posts in the first year, but progressively fewer in each year since. So what happened? Did I lose interest and motivation? To some degree yes, but mostly I got very distracted. Article number nineteen – ‘Could […]
The 12-24 film has been shortlisted for the final of The Charity Film Awards! This means we did very well in the public vote. Thank you so much to everyone who voted, we’re very grateful. The Charity Film Awards have been great publicity for our campaign and have helped raise awareness of EDS.
In 2016 I wrote a blog post titled ‘Could Nutritional Supplements Improve the Symptoms of EDS?‘ It’s the most viewed post on this site and has generated the most comments and emails by far. There is no treatment for EDS, so I was very intrigued by the idea that supplements could reduce symptoms. I sent […]