The 12-24 film has been shortlisted for the final of The Charity Film Awards! This means we did very well in the public vote. Thank you so much to everyone who voted, we’re very grateful. The Charity Film Awards have been great publicity for our campaign and have helped raise awareness of EDS.
In 2016 I wrote a blog post titled ‘Could Nutritional Supplements Improve the Symptoms of EDS?‘ It’s the most viewed post on this site and has generated the most comments and emails by far. There is no treatment for EDS, so I was very intrigued by the idea that supplements could reduce symptoms. I sent […]
Hello! Sorry (again) for not posting anything for so long. I have limited free time and energy each day, and currently I’m busy working on the 12-24 campaign. Hopefully you’ve all heard about the campaign by now, if not then I haven’t been doing my job very well! The 12-24 campaign is raising money to research […]
By A Reluctant Contortionist in Ehlers Danlos Syndrome, Parenteral Nutrition, Postural Orthostatic Tachycardia Syndrome 4 Comments Tags: 12to24, Ehlers Danlos Syndrome, Parenteral Nutrition, Postural Orthostatic Tachycardia Syndrome, Reluctant Contortionist, zebrastrong
Hello again! Firstly, I’m really sorry I haven’t posted anything for so long. I have limited spare time and energy and I’ve been concentrating on a different EDS project instead. Hopefully you’ll agree it was worth taking a break for. About 18 months ago I wrote a blog post titled ‘Could Nutrition Supplements Improve the […]