A Reluctant ContortionistA Reluctant Contortionist
A blog about being too bendy. To raise awareness of Ehlers Danlos Syndrome.
  • Blog
  • About
  • What is EDS?
  • What is POTS?
  • My Story
    • Being diagnosed with POTS.
    • Being diagnosed with EDS.
    • Being fed through tubes.
  • Gallery
  • Links
  • Contact

Happy New Year!

January 3, 2016 By A Reluctant Contortionist in Ehlers Danlos Syndrome 6 Comments Tags: Ehlers Danlos Syndrome, Parenteral Nutrition, POTS, Reluctant Contortionist

2016

Regular readers of this blog (all 3 of you 🙂 ) may remember that last year I published a list of new year’s resolutions (click HERE to read the article). So I should start 2016 with an update on how I got on. 1, Walking Unfortunately I made no lasting progress, despite a lot of effort. […]

More

One Year of ‘A Reluctant Contortionist’!

November 29, 2015 By A Reluctant Contortionist in Ehlers Danlos Syndrome 14 Comments Tags: Ehlers Danlos Syndrome, Parenteral Nutrition, POTS, Reluctant Contortionist

First Birthday Graphis

In my very first post ‘Hello World’ I said that I would write this blog for a year, but if I wasn’t getting much interest I would then turn it into a Star Wars fan site. Well, with a hotly anticipated new Star Wars film just 3 weeks away, a fan site is very tempting! […]

More

‘Extra Time’

November 18, 2015 By A Reluctant Contortionist in Ehlers Danlos Syndrome 8 Comments Tags: Ehlers Danlos Syndrome, Parenteral Nutrition, POTS, Reluctant Contortionist

stop watch

The charity Ehlers Danlos Support UK publish a magazine titled ‘Fragile Links’. I wanted to write something for the magazine to share some of my experiences living with EDS, (and to publicise my blog a little 🙂 ). My story spans over two decades, which would have made for a very long article. So I […]

More

Two Years of Parenteral Nutrition

August 30, 2015 By A Reluctant Contortionist in Ehlers Danlos Syndrome, Parenteral Nutrition 10 Comments Tags: Ehlers Danlos Syndrome, Parenteral Nutrition, POTS, Reluctant Contortionist

Homer fat and happy shopped final b

Two years ago this month I weighed just 7 stone and 1 pound. I’m over six foot tall so I had a waistline like a dehydrated supermodel. I’d been unable to eat normal food for some time, so I was being fed liquid food through a tube into my stomach, called a PEG. I found […]

More

Letters from my MP

July 12, 2015 By A Reluctant Contortionist in Ehlers Danlos Syndrome 2 Comments Tags: Ehlers Danlos Syndrome, Parenteral Nutrition, POTS, Reluctant Contortionist

House of Commons

Shortly after the general election I decided to write to my local MP, Sir Paul Beresford. I wanted to ask what plans the new government has for funding and encouraging research into Ehlers-Danlos Syndrome. I also wanted to highlight the importance of early diagnosis and appropriate treatment of EDS to avoid long term disability. I […]

More

«< 3 4 5 6 7 »

Social

Follow me on:

Recent Posts

  • Rebound Hypoglycaemia
  • Ten Years Without Food
  • Coronavirus Lockdown
  • Dem Bone Scans – Update 2
  • 5 Years of ‘A Reluctant Contortionist’
  • The 12-24 Film has been Shortlisted for the Final!
  • The 12-24 campaign has raised £201,000!
  • 12-24 in The Charity Film Awards!
  • ‘The Big Bum-ble’ Sponsored Walk – Update
  • The 12-24 Film
  • Allergy Testing
  • A New Hickman Line
  • A Blog Makeover
  • Are All Administration Sets Sterile?
  • Applying for a Personal Independence Payment (PIP)
  • Home Artificial Nutrition Week – UPDATE
  • My New Wheels…
  • Dem Bone Scans – Update
  • Could Nutritional Supplements Improve the Symptoms of EDS?
  • An article for the PINNT Newsletter
  • Happy New Year!
  • One Year of ‘A Reluctant Contortionist’!
  • ‘Extra Time’
  • Two Years of Parenteral Nutrition
  • Letters from my MP

Email Updates

Sign up for our email updates

Social

Follow me on:

Search

  • Medical Information Disclaimer
  • External Links Policy
A Reluctant Contortionist
© A Reluctant Contortionist 2021
Powered by WordPress • Themify WordPress Themes

↑ Back to top