8-14th August was Home Artificial Nutrition Week, organised by the PINNT charity. As someone who has had his life saved twice by different forms of artificial nutrition I should have been fully behind this campaign, but I’m over three weeks late writing this article, sorry! My excuse is good though, I’ll get to that later. […]
Postural Orthostatic Tachycardia Syndrome
My New Wheels…
I first started struggling with mobility in my late twenties. I injured both my ankles at the same time and suddenly it was a problem just getting around the house. In the few years afterwards, I added knee and hip injuries and several problems with my feet and toes. Despite endless physiotherapy, none of those […]
The EDS International Registry – Update
Would you like to find a friend who knows exactly what it’s like to live with EDS? Well the Ehlers Danlos International Registry aims to help people do exactly that. ‘We want to facilitate the connection between one EDS sufferer and another, in hopes of helping people deal with their illness and the way it impacts their […]
EDS and Anaesthetics
There was an interesting discussion in the EDS-UK Men’s support Group on Facebook recently about local anaesthetics, and how they are less effective on people with EDS Hypermobility type. It’s a well known problem, but the reason they are less effective seems to be unknown and there’s currently no accepted method of managing the issue. […]
‘A Rough Guide to Hospital’
The Hypermobility Syndromes Association is a British charity which offers practical support and information for anyone with any of the hypermobility syndromes or people involved in their care. They publish a quarterly magazine called the ‘HMSA Journal’. I wrote an article for the ‘Have Your Say Section’ of the magazine which was published this week. I […]